Resources and Support Groups

Organizations Dedicated to Supporting Patients and Families

National Congenital Heart Defect Resources and Supplements

Adult Congenital Heart Association

Childrens Heart Foundation

The Children’s Information Network (TCHIN)

Heartpedia

i heart change

Sister By Heart

Little Hearts

Mended Little Hearts

Sudden Arrhythmia Death Syndrome Foundation (SADS)

 

California Resources and Support Groups

Build My Heart Foundation

Camp Taylor

Camp del Corazon

 

Michigan Resources and Support Groups

Pediatric Congenital Heart Association

Hearts of Hope of SE Michigan

Heart Families from Mott

Michigan Adults with CHD

Children’s Palliative Care Coalition

Children’s Heart Foundation - Michigan Chapter

 

Ohio Resources and Support Groups

Congenital Heart Network of Greater Cincinnati

Adult CHD Survivors of Cincinnati

 

South Carolina Resources and Support Groups

MUSC – The Children’s Heart Program of SC

Emerson Rose Heart Foundation

MUSC Heart Family

Palmetto Hearts

Cross Bridge Family Ministries

 

Get Involved