Resources and Support Groups

Organizations Dedicated to Supporting Patients and Families


PAC³ Participating Hospitals

Research Explained

COVID 19 Resources

Children's Heart Foundation

Resources from ACTION

NPC-QIC Research Explained

Cardiac Networks United Resources and Articles

WHO Guidance

National Congenital Heart Defect Resources and Supplements

Adult Congenital Heart Association

Childrens Heart Foundation

Conquering CHD

Heartpedia

i heart change

Sister By Heart

Little Hearts

Mended Little Hearts

California Resources and Support Groups

Build My Heart Foundation

Camp Taylor

Camp del Corazon

Michigan Resources and Support Groups

Hearts of Hope of SE Michigan

Heart Families from Mott

Michigan Adults with CHD

Children’s Palliative Care Coalition

Children’s Heart Foundation - Michigan Chapter

Ohio Resources and Support Groups

Congenital Heart Network of Greater Cincinnati

Adult CHD Survivors of Cincinnati

South Carolina Resources and Support Groups

MUSC – The Children’s Heart Program of SC

Emerson Rose Heart Foundation

MUSC Heart Family

Palmetto Hearts

Cross Bridge Family Ministries

Get Involved